Never before have I gotten so much advice. But then, I’ve never had such a mysterious illness.
For the past four years, I’ve suffered from depression and severe anxiety. It came, unexplained, out of the blue. I’ve tried at least ten different drugs without success to treat it. I get electroshock (ECT) treatments every two-three weeks but they’re really geared to relieve depression, not anxiety, and I mainly suffer from the later. As a result, perhaps, ECT treatments only make me feel good for a day or so.
But that’s the first line of advice I encounter – from both my husband and the psychiatrist: that I should get regular ECT treatments because I was a wreck before I started ECT. They both believe that although the therapy’s immediate benefits are short-lived, it has helped my overall functioning, allowing me to travel and write. (My husband points out that I am writing this on an ECT high, one day after the procedure; most of the time I am too anxious to write.)
My own instinct tells me it’s not worth it to wake up at 5 a.m. to get a seizure produced under general anesthesia, which leaves you groggy and unable to remember the names of your children. And a neurologist told me he didn’t like ECT because the therapy destroys brain cells. After more than 30 treatments, I can definitely say that my memory is not what it used to be. Yet I find it hard to argue with my husband and the psychiatrist because, unlike them, I can’t remember my catatonic, pre-ECT days.
So I take their advice and get the ECTs. As a result, both my mother and my therapist say I’m not listening to my own inner voice, especially since I get anxious and don’t sleep the night before being electroshocked. They don’t think I should get the ECTs.
Then there is our beloved nanny/housekeeper who gave me five showers in my catatonic, pre-ECT days and who is like a member of our family. I rely on “nanny” as we call her, in all sorts of ways and most of all to help me keep my anxiety in check. She constantly reminds me to take things “dia por dia” or “one day at a time” – by far the most valuable advice I’ve gotten on this difficult road.
This has been hard for her as well as for the rest of my family. Yet I’m just incapable of taking a lot of her advice to get out and do things, like walk the dog, staring out the window drinking coffee instead. Such is the nature of an anxiety disorder; you just don’t want to go out into the world. (I do drive my younger daughter to dance, something I didn’t used to do.)
So while I took up nanny’s suggestion to start swimming, we often end up disagreeing, with her advising me to do something I say I can’t do. Among other things, she thinks I should swim in our freezing cold pool twice a day.
And that’s not to mention those caring and compassionate family members who have made their opinions known in an effort to help me. My sister-in-law got me signed up for a clinic where you send stool samples for analysis so we can see if anything strange is going on in my gut. (She is doing the same for herself.) My brother and mother want me to go to a major center like the Mayo Clinic.
I sent off the stool samples and my husband signed me up for the Mayo Clinic. I then wrote “please cancel” on the information the clinic sent us. I’m scared to travel, so going to the Mayo Clinic sounds like flying to the moon, plus I believe Miami has good doctors.
Still I think I could handle it all if it weren’t for the fact that some of my beloved husband’s advice conflicts with my gut instincts (which he claims are solely to sit staring out the window). In addition to believing more in ECT than I do, Bill thinks it would be beneficial for me to listen to some hypnotherapy tapes I have on my phone and believes vitamin injections help me – neither of which I feel.
He also likes the psychiatrist better than I do, not that I prefer the others we’ve seen.
I appreciate so much how Bill has supported me through this ordeal that I tend to go along with his opinions. And I can’t deny that he remembers the last four years and last few weeks a lot better than I do.
So are my mother and therapist right: am I failing to follow my own best instincts because I’m ill? Or am I just taking the best advice around me like any smart, sick person would do? I really don’t know, but I’d love to hear your comments.
Just because I’m up to my eyeballs in advice doesn’t mean I couldn’t use a bit more.
Do you have advice for me? Share by commenting below!
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